After being diagnosed with a rare disease, porphyria, Claire was faced with defining and embracing a “new normal.” Claire teaches women how to celebrate small wins and make intentional decisions when faced with new challenges, including asking for support and advocating for what they need.
Battling the rare disease or porphyria put Claire in the cross hairs of developing work-life balance, and she learned that identifying and relying on “Team Claire” was critical. In this interactive talk, Claire will teach you how to identify your team, rally your quarterback, determine your players and your key, behind the scenes supporters.
Audience: People living with rare disease, Advocates, Caregivers
More than one in 10 people have a rare disease, but medical research and legislative action is not prioritizing efforts to find cures. When rare disease patients, caregivers, supporters and healthcare professionals rally together, their collective voices can make a difference. Claire shares five key things every person can do to help the cause and advocate.
Audience: Medical Professionals
The average doctor sees two rare disease patients a day—yet it can take years or decades to be diagnosed. Many rare disease patients experience pain or symptoms, but are told “it isn’t real.” That was the case for rare disease advocate and patient Claire Richmond, who shares her 20-year diagnostic odyssey, which can help professionals better understand patients who might suffer from the 7,000 rare diseases currently identified.