Daringly Claire

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Claire's Invisible Life

One Thousand Flaming Swords

One Thousand Flaming Swords

A newsletter about compassionate rituals for living with chronic illness.

One Thousand Flaming Swords

One Thousand Flaming Swords

One Thousand Flaming Swords

A column for people with porphyria, by people with porphyria.

Featured In

We Are Iowa

Iowa woman shares story of diagnosis of rare disease

- Feb 29, 2024

Iowa Capital Dispatch

Here’s what I’ve learned from seven years with rare disease - Feb 29, 2024

Mary Swander's Emerging Voices

It's hard to try new things - Jan 25, 2024

Talk of Iowa

Rare disease advocate waited 19 years for her diagnosis - Jan 10, 2023

The Washington Post

What disabled people know about making better New Year’s resolutions - Dec 30, 2022

Fearless

How 19 years of medical trauma taught me to be my own advocate - Feb 22, 2021

The Mighty

Questioning if I'm 'sick enough' as someone with chronic illness - Nov 27, 2020

Healthy Women

My 19-year journey to diagnosis of painful disease - Sept 14, 2020

Iowa Healthiest State Initiative

Make It OK: Claire's Story - Apr 29,2020

Business Record

Guest opinion: staying at home and practicing social distancing protects people like me - Mar 17, 2020

Iowa Capital Dispatch

Newly approved drug offers hope, but my fight continues - Feb 27, 2020

Prevention

My keto diet almost killed me - Jan 17, 2020

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For compassionate rituals for living with chronic illness, please check out my newsletter, Claire's Invisible Life.