A newsletter about compassionate rituals for living with chronic illness.
A column for people with porphyria, by people with porphyria.
Rare disease advocate waited 19 years for her diagnosis - Jan 10, 2023
My 19-year Journey to Diagnosis of Painful Disease - Sept 14, 2020
Make It OK: Claire's Story - Apr 29,2020
Newly Approved Drug Offers Hope, but my Fight Continues - Feb 27, 2020
My Keto Diet Almost Killed Me - Jan 17, 2020
True Grit - Mar/Apr 2019
Confessions of a Recovering To-Do List Addict - Mar 28, 2019